Chiari Malformation Awareness Month 2022.

at least i have a brain

Chiari Malformation Awareness is imperative.

It is – or mine is- a condition that was left unrecognised, undiagnosed and untreated for many years.

The awareness I would LOVE to be able to deliver is to the medical professionals (none of whom I want to name or shame) yet nonetheless the many doctors who by not recognising that a “substantial chiari malformation” was my condition, allowed me to degenerate for too many years.

I would like to applaud the honesty of the surgeon who when I eventually reached his care, was honest enough to tell me “i hate this condition as there is very little I can do to help cure it!”. I value him.

He did however, in the 8 hours of brain surgery remove the crippling headaches which had become an integral part of my life, and one of the reasons I had to retire from work at much…

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