(Then and Now for Chapter 28: The Epilepsy Monitoring Unit)

Going to an Epilepsy Monitoring Unit will get more clues about what is happening in a seizing brain. We probably should have gone sooner, but the chaos with her first neurologist kept us undecided. I think we needed to feel confident about the doctor in charge before moving to this step. What we feared in the beginning was a source of hope at this stage in Rose’s struggles.

We had basically exhausted most drug options by this point. It was time to be surrounded by a trained team of professionals. We were hoping to find the source of seizures during Phase I of EMU. There were other ways to find out what was happening besides just the electrode leads glued to her skull. Rose also had many scans.

Our first experience with Phase I did not give us the information…