Rose’s first seizure medication was a chewable tablet we will call 1T. Now we knew that the cause of the seizures was always in her brain, not just showing up with fevers. The enemy was a resident, not a visitor. Our family was in a constant state of vigilance. I do not say this lightly. Our vigilance continued for decades. We were emergency-ready twenty-four/seven. Rose nicknamed herself 24/7 because of this. We all tried to play this down, but it was what it was. Epilepsy was the new center of our universe, but we tried to carry on as before.
With the drug 1T, Rose became more active and hungry. She seemed hyper-emotional compared to her prior happy-go-lucky self. Was this change due to the new drug or an after-effect of the big seizure? Her carefree childhood was transformed into a series of tests and medications and worried faces.
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