Having Patience and Determination with my Disability

The Wheelchair Teen

What does it take to be a teenager with a progressive disability? The answer is bucket-loads of patience and determination. It can take me much longer to complete ordinary tasks than most other people so I often need patience to see it through and determination to help me do it.

If you know me, you know that my story isn’t that different from most people with a progressive condition: I started out with the ability to walk and with the full use of my fingers, but gradually lost more and more function as I hit puberty. I’ve talked before on this blog about how difficult these changes were. While all of my other school friends were growing up and changing, it felt like I was stepping backwards as more of my body started to grow dormant. The doctors used words like: “deterioration” and “decline”, which were horrible words for an…

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