What is a parent Carer

What is a parent carer? It’s staying at home with our feet up all day, While others work our wages they pay. Its getting the offers, the discounts and deals, All to help with our child’s extra needs. It’s the DLA we get for no reason, It’s jumping the queues while others stand freezing. It sounds so easy if these perceptions were true! Here’s a few truths I’ll share with you…It’s the bruises we hide from the meltdown last night From holding them until they had no more fight Its the regimented life that we now live For a family meal out what we wouldn’t give It’s the sleep we don’t get and the nights out we miss It’s the explanation to others about all of this It’s the fights that we face in every single way to get their needs met at the end of the day Its the story you tell for the hundredth time to various people, you want to cry It’s the tears we hide because we’re scared we’re not coping It’s the smiles we paint on there’s no use in moping It’s the appointments to remember with doctors and dentist to be honest I’m not sure how we’re not all demented. It’s the progress reviews we sit through at school hearing their struggles it all seems so cruel Its the stares in the playground, the parties they don’t get asked to. It’s explaining to them why on the 10th time they’ve asked you. It’s buying exactly the same pair of shoes in a different size. It’s fighting the system that’s already broke But carrying on with hope against hope Its apologising first for what is to come the courage to go out when you’d rather stay home It’s educating teacher family and friend about the conditions and that they won’t mend It’s the guilt that we feel that we’re not always enough. It’s the schools changing routines that make our day and impacts our child in every way It’s wanting to work but not having the time it’s the desperation to have something that’s solely mine. It’s giving up the job that you dearly love. It’s the not giving up when the going gets tough Its a appreciating the smooth and riding the rough It’s the smiles that they give you and the light in their eyes It’s the ‘ I love people that take us by surprise It’s the others you meet in this new way of life that gets you through the troubles and strife It’s the strength you didn’t know you possessed it’s the times you went on even when you were stressed Its the love that you have for your child who is special that gets us through these tasks but some understanding and empathy from others is not too much to ask! Picture of me and my type 1 diabetic toddler.

Anon!

How to Care for the Disabled

Caring for the disabled can be a monumental task, especially if you are handling a loved one or close friend. Not only are you watching over the person to avoid further complications, but you also have feelings yourself. You might feel overburdened and angry at times, even though you are doing everything you can to help. It takes tremendous energy and strength on your part. But people being cared for go through similar difficulties, knowing that your struggles are necessary for their needs.

Develop a strong support system. To relieve yourself of the many duties that have to be done, have friends and family available to share in the caring. Keep in close contact with health care aides who may also be involved.

Arrange all medical care needed. This includes setting up or monitoring scheduled visits to the doctor or medical clinic. Help the person with any medications that need to be taken on a regular basis. Avoid the possibility of overdoses or missing doses of medicine. Pillboxes are a good way to properly sort medications according to the days of the week. Stay informed about the medication the person is taking through communication with the person’s physician.

Keep your loved one’s mind and body active to help prevent the depression and hopelessness that can strike any disabled person. Good nutrition and exercise play a key role in improving one’s strength and moods. Nutritious foods should always be available at the home, kept fresh and up to date so it does not become unhealthy. Any physical activity, of course, will have to be done based on the person’s abilities.

Protect your loved one from any dangers in the home. Make sure the house is safe. This may include removing rugs that can cause slips, installing handrails in the bathroom or on walls throughout the home, making sure the rooms are free from debris or anything else that pertains to the person’s disability.

Take charge of yourself. As a person caring for a disabled loved one, you must remember your abilities and limits. Take regular breaks with the help of a relative or someone close to avoid becoming frustrated or feeling helpless.

Try to make the disabled person feel as independent as possible. Allow your loved one to handle as many tasks as he or she can without your assistance.