What Most Offends YOU About How People Treat Epilepsy?

Interesting read from someone with the condition. I’ve never named mine but your right ignorance & discrimination is common

Epilepsy Talk

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.

There’s the imitation of someone having a seizure (big on T.V.)…bullying and name calling in the schoolyard…people turning their backsonce they find out you have the big “E.”

You might as well have leprosy!(No folks, contrary tomyth, it’s not catching!)

A pet peeve of mineisbeing treated as a pariah.

Public serviceorganizations and businesses politely refuse my offer to giveapresentation. Heaven forbid I upset their audience — during lunch!

There’s the stigma of employment, where what you disclose about your epilepsy determines your future.

And the feeling that if you have epilepsy, you can’t be expected to achieve anything. (My parents almost died when I graduated from college Magna Cum Laude!)

We constantly have to stand up for ourselves, endure ignorance, and advocate…

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Recovery Awareness Month —

Survivors Blog Here Mental Health Collaborative

September is Recovery Awareness Month and it’s a very important month. Millions of Americans and people around the world are in recovery from alcohol, drug, or other addictions. We all need help, I’ve been there myself. I had a drinking problem for over 20 years, it took a long hard look at myself and the […]

Recovery Awareness Month —

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Child Diabetes from a parent’s point of view.

Nobody saw you. At 3am, headlamp on, sneaking into her room Every. Single. Night. Praying she doesn’t wake as you bleed her finger for the 10th time today4mmol. Shit.Too low for 3am.Get the juice carton

“She needs this to survive,” you repeat to yourself“ Will she be able to handle this life?” “Will I?”

Nobody saw you cry Because you always had to be so strong You can’t let them see your broken heart You must keep going She has to be so brave, you must set the example Soldier on

Nobody saw you desperately shoving sugar in your shaking and confused child“One more sip, baby”“One more gummy bear for mummy, please

”Nobody saw you Trying to count how many carbs she ate Tiny teeth marks on an apple – is that 5 carbs worth or 8?Did she eat three french fries, or was it six? Not enough insulin, she goes high and there’s long-term damage to her organs Too much insulin and we’re looking at an immediate and dangerous issue.

Nobody saw you on the phone With your insurance company With your diabetes supply company Your endocrinologist Your nurse10 phone calls this week when you were supposed to be working Or napping Or eating

Nobody saw you, nobody listened when you tried to educate them To tell them about a condition so complex that they can never truly understand unless they live with it It’s an autoimmune disease No, it can’t be prevented No, there is no cur eyes, she can eat.

that Nobody saw you So scared to sleep through an alarm Terrified they might not wake up in the morning Waking up to feel like you can’t do this crazy dance another day But you rise to take on another 24 hours – for them Check the blood sugar, treat the high, count the carbs, treat the low Nobody saw any of that They simply saw you at the park, the museum, grocery shopping

see you, brave ones see your grit and your daily grind I see your fears for the future I see your fierce love and determination for your child I see you raising a warrior, and in the process becoming one yourself!

When Bipolar and Anorexia Collide

I now have a diagnosis of anorexia in remission, and I am in a good place with my recovery.

I also have a diagnosis of bipolar disorder, an illness which I manage very well most of the time. Although these two conditions are unrelated, when they collide they are toxic.

There is a huge overlap between eating disorders and
depression, which to me makes perfect sense. It’s well known that adequate
nutrition is a huge part of contributing to overall positive wellbeing, and not
nourishing yourself properly is obviously going to impact upon that. Added to
that the rock bottom self esteem, intrusive thoughts and feelings of utter
worthlessness, and that’s a pretty potent mixture. It’s clear that eating
disorders and depression go hand in hand.

What may be more unclear, however, is the relationship
between mania and eating disorders. The lure of mania is well documented –
although it…

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How to get better at receiving feedback  — — Survivors Blog Here Mental Health Collaborative

IDEAS.TED.COM Sep 15, 2021 / David Burkus PhD Nata Schepy This post is part of TED’s “How to Be a Better Human” series, each of which contains a piece of helpful advice from people in the TED community; browse through all the posts here. For leaders at any level, the single best way to grow is to lead and […] […]

How to get better at receiving feedback  — — Survivors Blog Here Mental Health Collaborative

Panic Attack — Guest Blogger Change Therapy

Survivors Blog Here Mental Health Collaborative

Anxiety leading to Panic Attack Experiencing a panic attack is not simply about experiencing a moment of severe fright or nerves. They run much deeper than that. Contrary to popular belief, experiencing a panic attack is not simply about experiencing a moment of severe fright or nerves when you are about to make that speech […]

Panic Attack — Change Therapy

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Cerebral Adrenomyeloneuropathy — Survivors Blog Here Mental Health Collaborative

Originally posted on Walking the Rails: This one is not such a cheerful installment. I am aware that I promised that the content of this website would be optimistic and upbeat. Nonetheless, as we all know, the potential for cerebral involvement is part of the bargain. I do not plan to dwell on it, but…

Cerebral Adrenomyeloneuropathy — Survivors Blog Here Mental Health Collaborative

Lessons I’ve Learned from Loss

Don't Lose Hope

The risk of love is loss, and the price of loss is grief.” – Hilary Stanton Zunin

1. The people we love won’t always be around. Life can change in an instant, and permanently. Once it’s over, it’s over, and there’s no going back.

2. Loss shows us that time passes and comes to an end. The things that used to matter don’t matter any more. Grief crystallizes values and what matters most in life.

3. Grief follows its own schedule and trajectory. There isn’t a right way to work through grief. You take it as it comes, and take it one step at a time. It can’t be planned in advance, and it’s unpredictable.

4. Although life moves on around you as though nothing has changed, it’s OK if you focus on, and honour, what you’ve lost. Your grief is real and valid, and you should give…

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The Attack

Do you not live in what we here in the uk call a safe house. Where he is not supposed to know where you live?


So I opened my door. I should of never opened it. I recognized the knock and still opened it. He didn’t give me time to shut the door and he slammed it behind him. He threw me on the floor and and held me down to where I couldn’t move or breathe or even scream for help. He forced himself on me and raped me over and over again for hours. I was so scared to death. This isn’t the first time he has done this. I really wish I was strong enough to to something about it, but I am not. This caused me to relapsed on meth all I want to do right now is numb everything I am feeling…


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